Kicking Myself: The Perpetuation of Stigma Through Inaction

Two of my favourite bloggers on the subject of Autism have given me pause for thought this week. Yesterday was Mental Health Day. 1 in 6 adults will have a coming mental health problem, and yet there’s still such a stigma attached.

How can that possibly be OK?

It’s not.

Anonymously Autistic raised the point that it takes more than awareness of mental health issues to make life easier; we need acceptance of them. 

  
She’s not wrong. We might all be aware of somebody who suffers with mental health difficulties, might know the name of their condition, but do we know how to make them feel comfortable being themselves? Or do we expect them to hide their struggles, to fit in with the norm? Being aware just gives us labels…but it doesn’t make it easier for the people living with those labels. 

Moreover, as kids, we quickly learn that it’s an insult to call someone a spaz, a retard, a psycho. We know what those words really mean, but their currency is in the power of the insult. We have an awareness of difference – the weird kid in class, the tramp in town – but we don’t know what it’s like to be them. And those insults – that acceptance that it’s OK to mock mental health – stays with us.

For example, Tim from The Pathless Woods backs this up to a report of an open letter from a sister calling out the vile stranger who though it OK to mock her autistic brother in a supermarket.

Again, how can that possibly be OK?

Again, it’s not.

But as a society we have an awareness that mental ill-health exists, but we have an acceptance that it’s OK to mock people who suffer. 

It’s not.

  
But it’s so insidious. Who hasn’t called someone “crazy” or “insane” even with affection? Who didn’t avoid the odd kid at school for fear of being ostracised by association? Even without insulting a stranger in a supermarket, whose allowed the stigma of mental health to be perpetualted having stood by whilst derogatory comments were bandied about? 

I have to hold my hand up. I’m guilty of allowing mental health to be stigmatised.

I kick myself for not having the balls to call people out.

I kick myself for not befriending the girl with Downs Syndrome who was assigned to our class dressing room for a dancing show. I kick my 8-year-old self for not telling the popular girls off for teasing her when she didn’t understand what their words implied. I kick myself for being mean by association.

I kick myself for recoiling along with the other kids at primary school as Alan stormed along the corridors, full of rage. I kick myself for being needlessly dramatic in the face of a kid who just needed help.

I kick myself for not standing up to the customers of a coffee shop for their snide comments of a busking tramp. It would have been embarrassing to stand up so publically, but would have been more embarrassing for them to have their shameful behaviour laid out in front of them.

  
I kick myself for allowing “Autism” to be a punchline for an experience of rudeness on Facebook. Getting prissy with “I really don’t think that’s acceptable” isn’t going to help, but neither does letting it slide.

I kick myself for the post a friend put on Facebook of her experiences at comic con, of how her son’s laughed as they came up with increasingly ridiculous questions for a very enthusiastic exhibitor. Someone who was possibly Autistic and obsessed with their specialism. She made it OK for her kids to laugh at people with niche interests, people who find it difficult to socialise, people outside of the norm. And I kick myself for not calling her out. 

I kick myself for not telling the director and the sales manager at work to shut the fuck up and show more respect after they made retard noises about a client with learning difficulties.

I kick myself for not holding myself together or being able to give a clear explanation of Autism when the National Trust woman wanted me to discipline my son better in the middle of a meltdown.

  
And there must be more times. Occasions that have seeped from my conscious memory. Which is possibly even worse as I don’t carry the shame that I should do. And if it’s not shameful to allow people to be miserable then it’s surely a further indication of how accepted it is to be derogatory about mental health issues. Of how the stigma is perpetuated.

Well, that’s NOT acceptable. 

Acceptance should be for people to feel free to be themselves, not a society-shaped version of it. (Society’s ideas of what’s OK is fucked, so why should we listen and conform?) 

Let’s not just be aware of the conditions encompassed by mental ill health; let’s be aware of the people living with those conditions. Let’s accept those people and their needs, not spurn them as ‘other’ and something to distance ourselves from. Let’s make it acceptable for someone to admit that they’re struggling. Let’s accept our own culpability for the current lack of acceptance.

I’m fed up of kicking myself. I’m fed up of the stigma that forces people to hide themselves and allows others to set a derogatory dialogue. I’m fed up of allowing a world to exist that makes life for one in six people to be made harder through lack of acceptance. I’m aware that I need to change.

PS Re: the tramp in town. A couple of kids had far greater balls than me and took time to get to know the man behind the local rumours. Watch their video here: The Enigma of Juggling Jim.

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3 comments

  1. Pingback: Another Side – Gluestick Mum
  2. codeinfig · October 12, 2016

    terms of endearment are tricky. ive been searching my entire life for one of these mythical “sane people” and never met one– the sanest people ive ever known, the ones that really impress me with their sanity, have crazy lives. i dont think im disrespecting anyone by saying that.

    that said, i strongly feel (as many do) that the mental health industry exploits many of the people they arent equipped to help, when they insist that everyone get treated whether the treatment is adequate or harmful. they can certainly help some– and those they can help should have access– but i think more disservice is done by industry than society. those misplaced words really do suck, though.

    Liked by 1 person

    • gluestickmum · October 12, 2016

      I agree, terms of endearment are really tricky. It’s said with love so could be seen an acceptance of something other than ‘normal’ in a positive way…but words can also sting in a way that we can’t predict and when they do that the damage can be long-term.
      As for the mental health industry – at least within the local authority services – I suspect that powers that be that govern over an overstretched resource are happy for people to feel so stigmatised by their struggles that they fail to seek help. Instead they already fob off a great swathe of those in desperate need. As far as private mental health goes, from what I’ve read I also agree that it can be detrimental and downright damaging. Some treatments out there are just abhorrent!
      It all really sucks.

      Like

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